Your epidermolysis bullosa (EB) appointment

Managing your skin condition

Clinic locations 

 

EB clinics
Clinic nameDescription of clinicDayTimeStaff
General EB clinic Milder forms of EB in adults First and third Wednesday afternoons of the month   2pm - 5.30pm

Professor J McGrath,
Dr J Mellerio,
Dr E Wedgeworth

Combined multidisciplinary EB clinic  Complex EB  Monthly. All day Wednesday  All day  Professor J McGrath, Dr J Mellerio 
Nurse led EB clinic  Mainly localised EB simplex, dominant dystrophic EB First Wednesday of the month All day  Adult EB nursing team
EB foot clinic  Foot health service for EB patients  First and third Wednesdays of the month  All day  Mr Rodney Fawkes/EB specialist nurses 

How do I get an appointment?

You can be referred to our department by your GP or another hospital doctor.

  • Changing or cancelling your appointment

    If you need to change or cancel your appointment, please contact us as soon as possible by telephone 020 7188 6399 so that we can offer your appointment to another patient. 

  • Before your appointment

    Please bring a list of any current medications you are taking or creams you are using. Please include prescription medication, medicines you have bought yourself and any alternative medicines, e.g. herbal remedies.

    If you have been treated at another hospital for the same (or any related) condition, please bring any copies of correspondence or investigations with you.

  • What to expect at your appointment

    We make every effort to see you on time, but delays sometimes happen so please do allow plenty of time.

    You will be seen by a member of our team. We will take a full medical history and, to assess your skin problem properly, you may be asked to undress so that all of your skin (and not just the area(s) affected) can be examined.

    You may also need to have:

    • a blood test
    • skin sampling (taking a swab or scraping to look for skin infections)
    • skin biopsy (taking a small piece of skin under local anaesthetic).

    As this is a teaching hospital, students supervised by qualified staff might be involved in your care. It is valuable training for students and does not affect the quality of your treatment in any way, but please tell us if you do not want them to be present or involved. We will always respect your wishes.

  • After your appointment

    If the nurse or doctor decides you need treatment, we will send a letter to your GP explaining which medicines you need prescribed.

    Treatment is only dispensed from our hospital outpatient pharmacy if it is needed urgently or cannot be prescribed by your GP.

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