Xeroderma pigmentosum (XP) referrals

  • Referral address

    Xeroderma pigmentosum (XP) service
    St John's Institute of Dermatology
    2nd floor, staircase C, South Wing
    St Thomas' Hospital
    Westminster Bridge Road
    London SE1 7EH

    Email: gst-tr.xp@nhs.net
    Fax: 020 7928 1621

  • Contacts

    Sally Turner, clinical nurse specialist in XP (children)
    Tel: 020 7188 6339

    Tanya Henshaw, clinical nurse specialist in XP (adults)
    Tel: 020 7188 6351

We accept referrals from all medical professionals, including GPs, and are happy to give advice over the phone. Patients with a confirmed diagnosis of xeroderma pigmentosum (XP) who would like to attend our clinic should get in touch with the XP specialist nurses on either of the numbers above, or ask their doctor to refer them.

Please send your referral to the above address, including:

  • skin cancer history, along with histology reports
  • relevant blood test results, including Vitamin D level
  • other test results if known, e.g. audiology, MRI, EMG
  • if an interpreter is needed
  • the patient's telephone number.