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Improving care for patients with heart and lung disease

About the partnership

Guy's and St Thomas' NHS Foundation Trust, including Evelina London Children's Hospital and Royal Brompton and Harefield hospitals, and our partners King's College Hospital NHS Foundation Trust and King's Health Partners have been working on plans to change heart (cardiovascular) and lung and breathing (respiratory) services for patients.

The partners want to create a global powerhouse for heart and lung medicine and research in London, providing the best possible patient care and experience. This includes the development of a new purpose-built clinical academic facility on the St Thomas' Hospital and Evelina London Children's Hospital site.

Read more information about our vision to improve heart and lung disease care (PDF 786KB).

We are inviting patients with a heart or lung condition, their carers and families to help us explore ways we might improve and provide heart and lung care in the future. This is an opportunity to design the kind of care you and your family and other patients will receive in the future.

How to get involved

We would like to hear the views of heart and lung patients receiving care at Guy's and St Thomas', Evelina London, Royal Brompton and Harefield Hospitals or King's College Hospital, and their families.

You can:

Online workshops

We have partnered with Verve Communications and Playing ON Theatre Company to plan a series of workshops and activities throughout September and October 2021.

Find out about our workshops and all the different ways you can share your views. If you have any questions, are interested in sharing your views in other ways or would like to join our mailing list for future events, please email gst-tr.rbhkhp@nhs.net.

  • Introduction to the partnership – online event

    On 13 May 2021, we held an online event for adults, children and young patients who have a heart or lung condition, and their parents or carers.

    The aim of the event was to:

    • provide an introduction to the partnership and its work
    • share an update on how we have been involving our patients and their families so far and information about further opportunities to be involved
    • answer questions about the partnership and how to get involved

    You can read the introduction to the partnership presentation from this event.

  • Activities for children and young people with a heart or lung condition

    In October 2021, Playing ON Theatre Company will host a series of weekly workshops for children and young people (age 7 to 25) receiving care for a heart or lung condition. Playing ON Theatre Company will work with you to explore your experiences of receiving care at hospital or at home, and your views on what heart and lung services could look like in the future.

    They use games, improvisation, instant writing, visualisation and much more to create performances inspired by the experiences of children and young people.

    Groups will meet weekly in October 2021, building to a 'red carpet' event from home on Saturday 30 October.

    You are welcome to take part in as many sessions as you would like.

    Developing a vision for children’s heart and lung services: 7 to 11 years

    Developing a vision for children’s heart and lung services: 11 to 16 years

    Developing a vision for children’s heart and lung services: 17 to 25 years

  • Workshops about adult congenital heart disease services

    Verve Communications are running workshops for adult patients receiving care for congenital heart disease, and their carers.

    During these workshops we will talk about your experiences of receiving care at the hospital or closer to home, and your views on how we can deliver these services in the future.

    Inpatient care and transition to adult services

    You are welcome to take part in as many workshops as you like.

  • How we use your information

    If you choose to register, Verve Communications and Playing ON Theatre Company will only use the information you provide to contact you about the activities for which you have registered. We will store your data securely, in compliance with the Data Protection Act 2018, and only those involved in the project (including Royal Brompton and Harefield and King's Health Partners partnership staff) will be able to access it.

Join our reference groups

We are looking for heart and lung patients (adults and young people) and carers to join our reference groups to make sure the views of patients and the public remain at the centre our partnership's proposals.

If you would like to find out more about the role and how to join, please email gst-tr.rbhkhp@nhs.net.

Please note, these are voluntary (unpaid) roles. Travel and other reasonable expenses will be paid in accordance with our policy.

  • Adults patient-public reference group

    The group meets every 2 months, Tuesday or Thursday, 5.30pm to 7pm.

    You can join the adults patient-public reference group if you are:

    • a current or former heart or lung services patient at Guy's and St Thomas' Hospitals, Royal Brompton and Harefield Hospitals or King's College Hospital
    • the carer of a heart or lung services patient at one of the sites listed above
    • a representative of a charity representing the interests of heart and lung patients

    For a copy of the role description and an application form, please email gst-tr.rbhkhp@nhs.net.

  • Children and young people’s reference group

    The group meets every 2 months, Tuesday or Thursday, 5.30pm to 7pm.

    You are eligible to join the children and young people's reference group if you are:

    • 13-25 years old and are receiving or have received care for a heart or lung condition at Guy's Hospital, St Thomas' Hospital, Evelina London Children's Hospital, Royal Brompton and Harefield Hospital children's services or King's College Hospital children's services
    • the parent or carer of a children’s heart or lung services patient at one of the sites listed above
    • a representative of a charity representing the interests of children receiving care at heart and lung services

    For a copy of the role description and an application form, please email gst-tr.rbhkhp@nhs.net.

More information

Between January and February 2019, the partners held a number of 'listening events' and conducted a postal and online survey.

Our charity partners

We are delighted to work with our charity partners Evelina Children's Heart Organisation (ECHO), The Brompton Fountain and Royal Brompton and Harefield Hospitals Charity to support the involvement of patients, children and families in this project.

Royal Brompton and Harefield Hospitals Charity is passionate about amplifying the voice of patients. This is why we're excited to be working with Guy's and St Thomas' NHS Foundation Trust to help patients share their experiences and shape the future of heart and lung care.

Royal Brompton and Harefield Hospitals Charity

 

Here at ECHO we recognise the importance in patients and their families having a say in how their care is managed. We're delighted to be working with our partner organisations to involve patient families in designing their future care and encourage all our members to get involved.

Samantha Johnson, Chief Executive ECHO