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Improving care for patients with heart and lung disease

About the partnership

Guy's and St Thomas' NHS Foundation Trust, including Evelina London Children's Hospital and Royal Brompton and Harefield hospitals, and our partners King's College Hospital NHS Foundation Trust and King's Health Partners have been working on plans to change heart (cardiovascular) and lung and breathing (respiratory) services for patients.

The partners want to create a global powerhouse for heart and lung medicine and research in London, providing the best possible patient care and experience. This includes the development of a new purpose-built clinical academic facility on the St Thomas' Hospital and Evelina London Children's Hospital site.

Read more information about our vision to improve heart and lung disease care (PDF 786Kb).

We are inviting patients with a heart or lung condition, their carers and families to help us explore ways we might improve and provide heart and lung care in the future. This is an opportunity to design the kind of care you and your family and other patients will receive in the future.

How to get involved

We would like to hear the views of heart and lung patients receiving care at Guy's and St Thomas', Evelina London, Royal Brompton and Harefield Hospitals or King's College Hospital, and their families.

You can:

Online workshops

We have partnered with Verve Communications and Playing ON Theatre Company to plan a series of workshops and activities starting in May 2021.

Find out about our workshops and all the different ways you can share your views. If you have any questions, or to join our mailing list for future events, please email gst-tr.rbhkhp@nhs.net.

  • Introduction to the partnership online event

    • Date: Thursday 13 May, 6.30pm to 8pm

    This online event is for to adults, children and young patients who have a heart or lung condition, and their parents or carers. It will:

    • provide an introduction to the partnership and our work
    • share an update on how we have been involving our patients and their families so far and information about further opportunities to be involved
    • answer your questions about the partnership and how you can get involved

    Register for the introduction to the partnership event on the Eventbrite website.

  • Activities for children and young people with a heart or lung condition

    In Autumn 2021, Playing ON Theatre Company will host a series of weekly workshops for children and young people (age 7 to 25) receiving care for a heart or lung condition. Playing ON Theatre Company will work with you to explore your experiences of receiving care at hospital or at home, and your views on what heart and lung services could look like in the future.

    They use games, improvisation, instant writing, visualisation and much more to create performances inspired by the experiences of children and young people.

    Register your interest in these events to receive updates about planned dates.

    Developing a vision for children’s heart and lung services: 7 to 11 years

    Developing a vision for children’s heart and lung services: 11 to 16 years

    Developing a vision for children’s heart and lung services: 17 to 25 years

  • Workshops for parents and carers of children and young people

    Starting in May 2021, Verve Communications are running workshops for parents and carers of children receiving care for a heart or lung condition.

    During these workshops we will talk about your experiences of heart and lung care at the hospital or closer to home, and your views on how we can deliver these services in the future. Each workshop will focus on a particular type of care including:

    • outpatient services (Thursday 20 May)
    • self-management of care at home (Thursday 27 May)

    • inpatient services at the hospital (Autumn 2021)

    • transition to adult services (Autumn 2021)

    • services to diagnose and manage heart conditions before a baby is born (fetal cardiology services) (Autumn 2021)

    You are welcome to take part in as many workshops as you like.

    Register for the workshops on the Eventbrite website.

  • Workshops about adult congenital heart disease services

    Starting in May 2021, Verve Communications are running workshops for adult patients receiving care for congenital heart disease, and their carers.

    During these workshops we will talk about your experiences of receiving care at the hospital or closer to home, and your views on how we can deliver these services in the future.

    You are welcome to take part in as many workshops as you like.

    Register for the adult congenital heart disease workshops on the Eventbrite website.

  • How we use your information

    If you choose to register, Verve Communications and Playing ON Theatre Company will only use the information you provide to contact you about the activities for which you have registered. We will store your data securely, in compliance with the Data Protection Act 2018, and only those involved in the project (including Royal Brompton and Harefield and King's Health Partners partnership staff) will be able to access it.

Join our reference groups

We are looking for heart and lung patients (adults and young people) and carers to join our reference groups to make sure the views of patients and the public remain at the centre our partnership's proposals.

If you would like to find out more about the role and how to join, please email gst-tr.rbhkhp@nhs.net.

Please note, these are voluntary (unpaid) roles. Travel and other reasonable expenses will be paid in accordance with our policy.

  • Adults patient-public reference group

    The group meets every 2 months, Tuesday or Thursday, 5.30pm to 7pm.

    You can join the adults patient-public reference group if you are:

    • a current or former heart or lung services patient at Guy's and St Thomas' Hospitals, Royal Brompton and Harefield Hospitals or King's College Hospital
    • the carer of a heart or lung services patient at one of the sites listed above
    • a representative of a charity representing the interests of heart and lung patients
  • Children and young people’s reference group

    The group meets every 2 months, Tuesday or Thursday, 5.30pm to 7pm.

    You are eligible to join the children and young people's reference group if you are:

    • 13-25 years old and are receiving or have received care for a heart or lung condition at Guy's Hospital, St Thomas' Hospital, Evelina London Children's Hospital, Royal Brompton and Harefield Hospital children's services or King's College Hospital children's services
    • the parent or carer of a children’s heart or lung services patient at one of the sites listed above
    • a representative of a charity representing the interests of children receiving care at heart and lung services

 

More information

Between January and February 2019, the partners held a number of 'listening events' and conducted a postal and online survey.

Read a report on findings from the patient and public engagement activities (PDF 1.57Mb).

Read the partnership's response to findings from patient and public engagement activities (PDF 169Kb).