Clinics

Advanced nurse practitioner (ANP) and clinical nurse specialist (CNS) clinics

Phone: 020 7188 0843

Email: [email protected]

Location: Rare Diseases Centre, 1st floor, South Wing, St Thomas' Hospital, Westminster Bridge Road, London SE1 7EH

Frequency: 3 times a month

This specialist clinic is for adults with less complex types of epidermolysis bullosa (EB), such as EB simplex.

Your appointment will be face-to-face or by telephone.

This clinic is by appointment only. Your specialist EB doctor can refer you.

Clinics are led by:

Podiatry (foot) clinic

Phone: 020 7188 0843

Email: [email protected]

Location: Rare Diseases Centre, 1st floor, South Wing, St Thomas' Hospital, Westminster Bridge Road, London SE1 7EH

Frequency: 2 times a month

At this clinic you'll see a podiatrist, a health professional trained to diagnose and treat abnormal conditions of the feet and lower limbs. They will have a specialist understanding of the issues related to EB.

Your specialist EB doctor or specialist nurse can refer you.

Clinic is led by:

Multidisciplinary clinics

Phone: 020 7188 0843

Email: [email protected]

Location: Rare Diseases Centre, 1st floor, South Wing, St Thomas' Hospital, Westminster Bridge Road, London SE1 7EH

Frequency: 2 times a month

This specialist clinic is by appointment only.

It is for people with complex and severe types of EB.

You'll attend for a half or full day. You'll see a range of EB specialists including a:

• consultant dermatologist
• specialist nurse
• dietitian
• ophthalmologist
• plastic surgeon
• physiotherapist
• hand therapist

Your specialist EB team or GP can refer you.

Consultant-led outpatient clinic

Phone: 020 7188 0843

Email: [email protected]

Location: Rare Diseases Centre, 1st floor, South Wing, St Thomas' Hospital, Westminster Bridge Road, London SE1 7EH

Frequency: once a month

At this clinic you may see a dermatology consultant or registrar.

Specialist EB nurses also attend this clinic and you'll be able to see them if this is requested by the doctor.

Infusion clinic

Phone: 020 7188 0843

Email: [email protected]

Location: Rare Diseases Centre, 1st floor, South Wing, St Thomas' Hospital, Westminster Bridge Road, London SE1 7EH

Frequency: once a month, on the 3rd Tuesday

This clinic is for intravenous infusions, such as intravenous iron. It is led by clinical nurse specialists and is for exisiting EB patients.

Your specialist EB team can refer you.