Read our latest advice on Coronavirus (COVID-19)


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Inherited metabolic diseases (adult)

Genetic, inherited disorders of the metabolism

Coronavirus: inherited metabolic diseases service update

Due to increased demand on the hospital due to the coronavirus  (COVID-19) pandemic we are having to make significant changes to our services which may require cancellation of appointments.

Patients

We are attempting to contact all patients with a future scheduled appointment. In some cases we are changing appointments to a telephone consultation or video appointment. Some appointments may be cancelled without a future date being arranged at this stage. If we cancel your appointment you will remain on our waiting list and we will contact you in due course. Some patients may be discharged back to their GP and we will write to you if this is the case.

If you have not heard from us within three days of your scheduled appointment please contact us by email on gst-tr.adultmetabolic@nhs.net. If you are unable to use email or your query is urgent, please call 020 7188 4004. Our phone lines are very busy and there may be a wait for your call to be answered.

Existing patients

If you are an existing patient who has previously been seen in our service and need advice from the clinical team please see below for the appropriate option.

Please use email as preferred contact for all queries.

Appointments:

  • For any queries regarding your appointment or the contact details we have for you please email gst-tr.adultmetabolic@nhs.net.

  • For urgent queries or if you are unable to use email please call 020 7188 4004 and leave a message. We will get back to you as soon as we can.

Prescriptions and dietary supplements:

  • For repeat prescriptions or queries regarding medications please email gst-tr.adultimdnurse@nhs.net.

  • For urgent queries or if you are unable to use email please call 020 7188 0850 and leave a message. We will get back to you as soon as we can.

Please ensure you send us the request at least three weeks before you are due to run out to allow us enough time to post the medications out to you.

Clinical and dietetic advice:

Please note that due to current situation with COVID-19 and staff re-deployment, your clinical query will be reviewed and triaged and dealt with according to clinical priority. We may take up to two weeks to respond to any non-urgent queries.               

  • For dietetic advice please email gst-tr.adultimddietitians@nhs.net with details of the dietetic support you require.

  • For urgent queries or if you are unable to use email please call 020 7188 9611 and leave a detailed voice message with your name, number and reason for your call. Voice messages are checked during working hours (Monday to Friday, 9am-5pm), not out of hours or weekends. We will get back to you as soon as we can.

  • For any other clinical advice please email gst-tr.adultimdnurse@nhs.net.

  • For urgent queries or if you are unable to use email please call 020 7188 0850 and leave a message. We will get back to you as soon as we can. These will be checked regularly Monday to Friday, 9am-5pm.

Urgent medical queries:

  • If your reason for contacting us is urgent and it is out of hours, or if you are unwell and present to hospital, call the switchboard on 020 7188 7188 and ask for the adult inherited metabolic diseases consultant on call.                                             

Please note, due to a high number of calls and emails, all correspondence will be reviewed and responded to accordingly. This can take up to seven working days depending on the urgency of your query.

See our frequently asked questions for further information. If your query is not covered, please either email or call us as appropriate.

GPs

We are doing everything we can to support GPs and your patients during the coronavirus (COVID-19) pandemic. If you need advice from our clinical team please email gst-tr.cocimda@nhs.net, copy in gst-tr.adultmetabolic@nhs.net and the clinician on call will get back to you.

Referrals

We encourage you to contact our clinical team by emailing gst-tr.cocimda@nhs.net (and copying in gst-tr.adultmetabolic@nhs.net) before making any referrals. We are vetting all referrals. We will be contacting urgent patients but we are not currently booking routine patients and so there may be a significant delay before seeing your patient. Please consider this before making any referral as our capacity to see new patients is very limited.

For urgent advice, contact Adult IMD consultant via switchboard on 020 7188 7188. We offer 24/7 on-call advice.

Consultant Connect

We encourage you to contact our clinical team by emailing gst-tr.cocimda@nhs.net (and copying in gst-tr.adultmetabolic@nhs.net) for any clinical advice.

For urgent advice, contact Adult IMD consultant via switchboard on 020 7188 7188. We offer 24/7 on-call advice.

 

 

Coronavirus

Please visit the main Trust coronavirus (COVID-19) page for more information.