Haemophilia and bleeding disorders

Your appointment may be:

How to get an appointment

Your GP or other health professional can refer you.

If you have a registered bleeding disorder you can use our emergency walk-in service.

Changing or cancelling your appointment

Phone: 020 7188 2781, option 1

Email: Haemostasis&[email protected]

If you're unable to come to your appointment, please tell us as soon as possible.

Before your appointment

Please bring:

  • a list of medicines you take
  • a list of any medicines you're allergic to
  • details of other current and past medical issues

If you're on regular factor replacement (prophylaxis) at home and are to have a dose on the day of your appointment, please bring it with you. Our nurses can give it to you and take bloods before and after, to help assess your treatment regime.

Please tell us if you need an interpreter.

You can bring a friend, partner or relative to your appointment.

During your appointment

You'll see 1 or more members of our team. This may be a:

  • consultant
  • doctor in specialist training
  • nurse
  • physiotherapist

We'll discuss your current and past bleeding symptoms and other medical issues. We will review any current treatment for your bleeding disorder. We will also discuss possible future treatment options including clinical trials, if appropriate.  

At face-to-face appointments, we will measure your:

  • blood pressure
  • heart rate
  • weight

You will usually have a blood test. You will have a physical examination if needed. Our physiotherapist might do an ultrasound scan of any problem joints.

We may ask you to complete a health questionnaire

We will discuss any follow-up appointments

You may need come back for more tests.

We are a teaching hospital. There may be undergraduate and postgraduate medical students present during your consultation.

Your appointment will usually last 15 to 30 minutes. If your appointment is face-to face, please allow at least 1 hour. We try to keep to schedule but our clinics can run late. We apologise for any inconvenience this may cause. Please speak to our reception staff if this is a problem.

For phone appointments we aim to call you at your appointment time, but this may not be possible if the clinic is running late. If we do not speak to you we will try to leave a message and phone again.

After your appointment

We will send a letter and treatment plan to you, your GP and other referring health professionals if appropriate. If you do not want to receive a copy of your letter, please let us know.

If you have signed up to MyChart, you'll be able to get your results, clinic letters and any future appointment details by the app.

If we diagnose you with a bleeding disorder, we'll register you at our centre and with the National Haemophilia Database (NHD). We will also send you a bleeding disorder card. You should carry this with you at all times and show it to health professionals if you:

  • go to hospital
  • need surgery, dental work or any other procedures
  • have an injury needing medical help

We aim to review all patients registered at our centre every 6 to 12 months, or as often as needed. Sometimes, if your condition is very stable, we'll ask if you want to be added to our list for patient initiated follow-up appointments. This allows you to decide if you need to see us again for an appointment. 

If you have a confirmed bleeding disorder and you're scheduled for any surgery, invasive procedures or dental work, please let us know as soon as possible. This helps us provide a treatment plan to reduce the risk of bleeding complications. Please tell us if you or your partner become pregnant. We can discuss how this may affect the pregnancy and baby.

Do you have any comments or concerns about your care?

Contact our Patient Advice and Liaison Service (PALS)

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