Coronavirus: Adult epidermolysis bullosa (EB) service update
In response to the coronavirus (COVID-19) outbreak, please read our advice and information before attending the service.
Clinic locations
EB clinics
| Clinic name | Description of clinic | Day | Time | Staff |
|---|
| General EB clinic |
Milder forms of EB in adults |
Monthly. Fourth Wednesday of the month |
2pm - 5.30pm |
Dr D Greenblatt,
Professor J Mellerio
|
| Combined multidisciplinary EB clinic |
Complex EB |
Monthly. Third Wednesday of the month |
All day |
Professor J McGrath, Professor J Mellerio and full team of nurse specialists, dietitians, physiotherapists, ophthalmologists, hand therapists and
plastic surgeons
|
| Mini multidisciplinary EB clinic |
Complex EB |
Monthly. First (and fifth) Wednesday of the month |
2-5.30pm |
Professor J McGrath, Professor J Mellerio and full team of nurse specialists, dietitians, ophthalmologists, and plastic surgeons
|
| Nurse led EB clinic |
Mainly EB simplex and dominant dystrophic EB |
Weekly every Tuesday and Skype clinic on fourth Thursday of the month |
All day |
Adult EB nursing team |
| EB foot clinic |
Foot health service for EB patients |
First and third Tuesday of the month |
All day |
Sandra Woolcock |
How do I get an appointment?
You can be referred to our department by your GP or another hospital doctor.
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Changing or cancelling your appointment
If you need to change or cancel your appointment, please contact us as soon as possible by telephone 020 7188 6399 so that we can offer your appointment to another patient.
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Before your appointment
Please bring a list of any current medications you are taking or creams you are using. Please include prescription medication, medicines you have bought yourself and any alternative medicines, e.g. herbal remedies.
If you have been treated at another hospital for the same (or any related) condition, please bring any copies of correspondence or investigations with you.
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What to expect at your appointment
We make every effort to see you on time, but delays sometimes happen so please do allow plenty of time.
You will be seen by a member of our team. We will take a full medical history and, to assess your skin problem properly, you may be asked to undress so that all of your skin (and not just the area(s) affected) can be examined.
You may also need to have:
- a blood test
- skin sampling (taking a swab or scraping to look for skin infections)
- skin biopsy (taking a small piece of skin under local anaesthetic).
As this is a teaching hospital, students supervised by qualified staff might be involved in your care. It is valuable training for students and does not affect the quality of your treatment in any way, but please tell us if you do not want them to be present or involved. We will always respect your wishes.
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After your appointment
If the nurse or doctor decides you need treatment, we will send a letter to your GP explaining which medicines you need prescribed.
Treatment is only dispensed from our hospital outpatient pharmacy if it is needed urgently or cannot be prescribed by your GP.
Useful websites