Your inflammatory bowel disease appointment

Specialising in Crohn’s Disease, ulcerative colitis and other forms of IBD

This page explains what you can expect at your inflammatory bowel disease (IBD) appointment.

Contacts

Medical secretaries tel: 020 7188 2491 or 020 7188 2497
Medical secretaries email: gastroofficestaff@gstt.nhs.uk.

To contact your GI surgeon’s secretary, please call 020 7188 4195 or 020 7188 2578.

If you have changed your address, telephone number or GP, please let us know on 020 7188 4804.

If you would like a copy of your medical records, please contact the information governance team on 0207 188 7525.

IBD advice line

Tel: 020 7188 2487 (please note the advice telephone line is currently unavailable).
Email: ibdhelpline@gstt.nhs.uk

  • Advice line information

    Use this line if you are experiencing worsening symptoms, a flare of your Crohn’s disease or ulcerative colitis or possible side effects related to your IBD medications. Tell us what symptoms you are experiencing and confirm which medicines you are taking (this is important as it may be different to what we hold on record for). An IBD specialist nurse will contact you either by email or by phone so be sure to include a telephone number to contact you on.

    Please include your hospital number (found at the top of your appointment or clinic letters) if you can but if not, you must provide your full name and your date of birth. This is so we can access your clinical records safely. If you do not provide these details we will ask you to reply with these details which will result in a delay in receiving advice.

    We aim to respond to your query by the end of the next working day, in line with national IBD Standards. The IBD specialist nurses work Monday to Friday 8am-4pm; therefore, you should not expect a response to an email sent on Friday until Monday.

    The IBD advice line is not an emergency service. If you have an urgent clinical need you should contact NHS 111 or your GP services. If you need immediate medical care you should attend your local emergency department (A&E).

Appointments

If you miss your appointment without rescheduling you may receive a letter to say you have been discharged from our IBD service. If this happens, please contact the relevant appointments team or the gastroenterology secretaries. In some instances you will be asked to arrange a new GP referral.

  • Making/changing your appointment

    • IBD clinic: tel 020 7188 8874 or email gst-tr@gastro.nhs.uk.
    • Surgical clinic: tel 020 7188 8875, option 3.

    • IBD infusion unit: tel 020 7188 7188, ext 51955 between 8am-4pm, Monday to Friday.
      Please note that this number should only be used for IBD infusion unit appointments. For clinical-related queries, please email ibdhelpline@gstt.nhs.uk.
    • Endoscopy: tel 020 7188 8887 or email endoscopyadmissionsteamgstt@gstt.nhs.uk.

      To contact us about capsule endoscopy scheduling or procedures please call endoscopy on 020 7188 8887 and ask to speak to Dean Borrow or Cecilia Morre.

    • Radiology: tel 020 7188 5490
    • To book or check the time of your MRI scan, CT or ultrasound scan, please call the imaging team on 020 7188 5463.

Tests and results

If we have asked you to get in touch with us once you have undergone your blood test, colonoscopy or MRI, please email ibdhelpline@gstt.nhs.uk.

  • Blood tests

    Most routine blood monitoring will be arranged by your GP.

    If your blood tests have been organised by the hospital they can be done at the walk-in blood test centre at St Thomas' Hospital or at Guy’s outpatient department (PDF 105Kb), 2nd floor, Southwark Wing, Guy's Hospital, Mondays or Wednesdays, between 9am-12.30pm.

    Please make sure the tests have been ordered before attending the blood test centre and bring the request form we have provided with you.

    The results of routine blood tests performed at the time of a clinic appointment are usually included at the bottom of the letter which is sent to both you and your GP a week or two after your visit. If you wish to discuss your results please speak to your GP or contact your gastroenterology consultant via their secretaries on 020 7188 2491, 020 7188 2497 or email gastroofficestaff@gstt.nhs.uk.

    The doctor, nurse or pharmacist who arranged the tests will review them and contact you by letter or phone if they have any significant concerns. Otherwise these results can usually be discussed with you at your next clinic visit.

  • Stool sample

    Stool samples can be dropped off at the blood test centre at St Thomas' Hospital or at Guy’s outpatient department (PDF 105Kb), 2nd floor, Southwark Wing, Guy's Hospital, Mondays or Wednesdays, between 9am-12.30pm.

    The samples must be contained in a ‘stool pot’ which can be obtained from your GP practice if you haven’t already been provided with one from the hospital. Please ensure that you write your full name and date of birth on the sample pot before submitting it to the staff for labelling (we advise you do this before you fill the sample pot).

  • Endoscopy results

    The results of any endoscopy procedure will usually be discussed with you briefly before you leave the endoscopy department and you will be provided with a copy of the report at the time. The results of biopsies taken at the time of the endoscopy will be reviewed once available but you would generally only be contacted if there is something that requires further discussion.

  • Capsule endoscopy results

    These results will not be available for several weeks after the test. The results are reviewed once available and you will be contacted if there are any concerns. If you would like a copy of the result then please contact the gastroenterology secretaries on 020 7188 2491, 020 7188 2497 or email gastroofficestaff@gstt.nhs.uk.

  • X-ray, MRI and other results

    Most scan results can be discussed with you at your next clinic visit and do not require you to be contacted. The results of scans are reviewed once available and you will be contacted directly if there are any concerns. If you would like a copy of the result then please contact the gastroenterology secretaries on 020 7188 2491, 020 7188 2497 or email gastroofficestaff@gstt.nhs.uk.

Medications/prescriptions

To check if your prescription is in stock, please call our outpatients pharmacy on:

  • St Thomas' Hospital: 020 7188 7644 or 020 7188 7642
  • Guy's Hospital: 020 7188 7614 or 020 7188 7611.

If you are expereincing a rash and think it might be related to your IBD medication, please contact your GP. You may be referred to a dermatologist if they think the rash is caused by your IBD medicines.

If you have any questions regarding drug compatibility or interactions, you can contact the medicines information patient helpline on 020 7188 8748 (Monday to Friday, 9am-5pm) or email medicinesinformation@gstt.nhs.uk.

  • How do I arrange a prescription?

    We are currently reviewing the way we manage prescriptions.

    All prescriptions will be sent to Guy's Hospital and will be signed by doctors once a week. Please give us plenty of notice when you are running out of your medication. When your prescription has been signed, we will let you know where to collect it from.

    Please note that repeat prescriptions are no longer arranged through the medical secretaries. Please email ibdhelpline@gstt.nhs.uk to request this and allow five working days. When ready, your prescription will be available for collection in the outpatients pharmacy at Guy’s Hospital or via the IBD Infusion Unit.

     

  • Pregnancy and medication

    If you have questions about how IBD or any medications you are taking might impact on fertility or pregnancy, please email us at ibdhelpline@gstt.nhs.uk, or discuss this with us at your next clinic appointment.

    If you are pregnant, or are planning to become pregnant, please keep us informed so we can update your records and plan when we should review you. Patients with IBD are able to have healthy pregnancies, and the majority of IBD medications (except for methotrexate or thalidomide) are safe for you to continue during pregnancy. If you are on a biologic medicine such as infliximab or adalimumab we will make an individualised plan for your treatment throughout pregnancy.

    Do not stop your medicines unless you have been told to do so by your IBD team.

    It is important that you continue with your treatment throughout pregnancy. If you are on a biologics medication, your infant should not receive any live vaccines (such as BCG or rotavirus) for at least six months after birth.

    You can access further information on the Crohn’s and Colitis UK website.

  • Travelling and your IBD medication

    If you are travelling abroad and need up-to-date advice regarding information specific to IBD medications, travel vaccinations, medication storage and other practical issues, please visit the IBD Passport website.

    Information about travel vaccinations can be found on the NHS Choices website.

    If you are travelling with injectable biologic medication (such as ustekinumab, golimumab or adalimumab) which requires refrigeration, you can obtain a variety of useful cooling travel wallets from ‘Frio Uk’. Healthcare at Home can also supply cool boxes for travel. Please contact Healthcare at Home on 0333 103 9499, extension 7050 for the travel team, who will be able to provide further advice.

    If you need a travel letter to carry these medications on aeroplanes, please contact Healthcare at Home on 0333 103 9499.

    Please make sure you have travel insurance and have declared your IBD. Advice on travel insurance can be got from Crohn’s and Colitis UK’s information service on 0300 222 6700 or email info@crohnsandcolitis.org.uk.

    Travelling with your injections is at your own risk. If the injections are exposed to temperatures outside of the recommended storage conditions whilst travelling (2 to 8 degrees Celsius) we cannot automatically replace the injections.

 

 

 

Contacts

Tel: 020 7188 2491 or 020 7188 2497

Email: gastroofficestaff
@gstt.nhs.uk

Support

Crohn’s and Colitis UK website