Inherited red cell disorders include sickle cell disease, alpha and beta thalassaemia and other forms of anaemia (for example G6PD deficiency, Diamond Blackfan anaemia).
Sickle cell disease is a multi-organ disorder. You may experience attacks of severe pain, bouts of chronic anaemia and damage to their kidneys, lungs, brain, eyes and other organs. We monitor these health complications at our clinics.
We have close links with community services and have specialist diagnostic laboratory services for red cell disorders. Our patients are offered the opportunity to participate in international trials and local research projects.
Our haematology day unit offers a red cell apheresis service for patients with long-term chronic complications of sickle cell disease, for example stroke.
Regular follow-up care is essential in reducing long term complications for patients with inherited red cell disorders. In particular, regular long term care can lead to increased life expectancy and reduced hospital admissions for patients with sickle cell disease.
Patient support group
We hold a patient support group every Tuesday, 6-7.30pm in the South Wing committee room, St Thomas' Hospital. This support group is for patients with sickle cell disorders who are seen at our department, and their family members and/or carers.
If you would like more information, please contact Mina Abedian on 020 7188 2718 or email firstname.lastname@example.org.
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