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Lead patient influencer role description

Position

Wheelchair user graphicLead patient influencer and member of the Apollo patient panel.

Staff contact

Holly Salisbury, engagement manager

What we will ask you to do

Lead patient influencers will need to:

  • bring a patient, parent or carer perspective to discussions and decision making
  • lead a group using common sense and diplomacy
  • articulate issues and escalate these to the engagement manager
  • be objective, fair and transparent when assessing options
  • voice opinions constructively and present views clearly
  • have effective interpersonal and communication skills

Estimated time commitment

1.5 days a month, on average. This is based on a lead patient influencer attending:

  • 1-2 patient panel meetings and design boards (a type of workshop) a month
  • 1-2 workshops a month

Preparation

We will give you all the information you need in each workshop. We can send the information to you before the workshop if that is helpful.

Lead patient influencers will be required to attend design boards and other key meetings to act as a representative of the wider patient panel. You may be required to read papers for these meetings ahead of time.

Length of events and meetings

  • Workshop meetings will be between 1 hour and 2.5 hours (plus breaks)
  • Design board and other meetings where you will represent the patient panel will be between 30 minutes and 1 hour
  • Other patient panel events will be between 1 and 1.5 hours 

Further information

  • Who are we looking for?

    We know that our patients, parents and carers have a wide range of experiences and skills. We want to hear from you if you:

    • have used one or more services at Guy's and St Thomas', Royal Brompton and Harefield or King's College Hospitals within the last 5 years
    • have some understanding and interest in how digital technology can be used in healthcare
    • have leadership experience
    • have experience chairing meetings and managing groups of people
    • are age 16 or over (applicants between the ages of 16 to 18 will need written permission from a parent, guardian or carer in order to take part)

    We want to involve a wide range of people, including those who:

    • are not very confident in using digital services
    • are confident in using digital services
    • are a parent of a patient who is under 16
    • have experiences and perspectives that we can learn from, including (but not limited to) those who:
      • have learning disabilities, and their carers
      • have sensory disabilities, and their carers
      • have mobility disabilities, and their carers
      • use assistive technology
      • have one or more long term conditions
      • have to travel to access hospital services
      • are over 75
      • speak English as an additional language
      • do not speak English as their primary language
      • come from a range of ethnic groups
      • are LGBTQIA+
      • are moving from children's to adult services
      • may feel socially excluded
  • What are the working groups?

    Direction working group

    • Date: September 2021 to May 2022

    Patients will be asked about the design of the patient facing parts of the system.

    • Series of design workshops (you can choose which ones to attend)
    • Design boards and other key meetings where a lead patient influencer will act as a representative of the wider patient panel
    • Patient panel meetings

    Testing working group

    • Date: June 2021 to December 2022

    Patients will be asked to test parts of the systems that patients will use.

    • Testing workshops (you can choose which ones to attend)
    • Design boards and other key meetings where a lead patient influencer will act as a representative of the wider patient panel
    • Patient panel meetings

    Communications and training working group

    • Date: January 2023 to April 2023

    Patients will help us to design our communications for patients about the system.

    • Design boards and other key meetings where a lead patient influencer will act as a representative of the wider patient panel
    • Patient panel meetings

    Implementation working group

    • Date: starts April 2023

    Patients will explore future improvements to the system

    • Implementation workshops (you can choose which ones to attend)
    • Design boards and other key meetings where a lead patient influencer will act as a representative of the wider patient panel
    • Other patient panel events