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Inherited heart (cardiac) conditions service

Contact

Phone: 020 7188 4927

Email: gst-tr.cardiology@nhs.net

We'll respond to your email within 2 working days.

Clinical advice

Email: gst-tr.iccnurses@nhs.net

Existing patients needing urgent advice can email our inherited cardiac conditions specialist nurses.

We'll respond to your email within 2 working days.

Addresses

Cardiac outpatients, ground floor, North Wing, St Thomas' Hospital, Westminster Bridge Road, London SE1 7EH

Map to cardiac outpatients at St Thomas' Hospital (PDF 2.25MB)

Cardiac outpatients, 1st floor, Southwark Wing, Guy's Hospital, Great Maze Pond, London SE1 9RT

Map to cardiac outpatients at Guy's Hospital (PDF 2.17MB)

Cardiac outpatients, suite 6, 1st floor, Golden Jubilee Wing, King's College Hospital, Denmark Hill, London SE5 9RS

Inherited heart conditions and coronavirus (COVID-19)

Brugada syndrome

Detecting and treating fever is important for patients with Brugada syndrome.

Follow the government's advice regarding social distancing and self-isolation.

A temperature higher than 38°C is a fever and should be treated using paracetamol or ibuprofen. If you have a high fever (40°C or higher) which does not come down after treating it, and if you do not have an implantable cardioverter-defibrillator (ICD), please go to your local emergency department for an electrocardiogram (ECG). You may need to be admitted for cardiac monitoring.

If you have Brugada syndrome, continue to follow the usual advice we give:

Long QT syndrome

Please follow our usual advice if you have:

  • long QT syndrome
  • a prolonged QT on your electrocardiogram (ECG) even when a definite diagnosis of an inherited condition has not been made

It is important to continue beta-blocker medicines if these have been prescribed by your doctor. Avoid medicines that can cause QT prolongation. Treat diarrhoea and vomiting promptly (for example with Dioralyte) to avoid low potassium levels.

Fever does not generally seem to cause a problem in long QT syndrome (but a possible exception is patients with long QT syndrome type 2). These patients should take paracetamol to reduce a fever (or antibiotics if appropriate for a bacterial infection).

Overview 

We aim to improve the diagnosis, treatment and outcome of patients with inherited heart disease. We provide:

  • diagnosis
  • high-quality care
  • psychological support for you and your family

We offer clinics at Guy's and St Thomas' and King's College Hospitals. These clinics combine clinical, familial and genetic assessment. We aim to minimise the number of visits you make to hospital.

We work closely with our children's heart services team at Evelina London to provide a smooth transition of care from childhood, to adolescence through to adulthood.

Inherited cardiac conditions are family disorders that can affect the heart muscle and the heart rhythm. Our team of doctors and other healthcare professionals provide treatment and support for a range of conditions.

Inherited heart muscle conditions are also known as cardiomyopathies. These can lead to heart failure.

They include:

Inherited heart rhythm conditions are also known as inherited arrhythmia syndromes. These conditions can cause problems with the heart rate and rhythm.

They include:

Other conditions we see include:

  • muscular dystrophies associated with heart involvement:
    • myotonic dystrophy
    • limb girdle muscular dystrophy
    • Emery-Dreifuss muscular dystrophy
    • Becker muscular dystrophy
    • Duchenne muscular dystrophy
  • inherited aortopathies

  • inherited metabolic disease with heart involvement such as mitochondrial disorders and Anderson-Fabry disease

We have access to a number of tests for the heart and genetic tests.

Research and clinical trials

We are part of King's Health Partners Academic Health Sciences Centre. This brings together research, clinical excellence and world-class teaching to deliver advances in healthcare.

Health information

British Heart Foundation has information and support for people with inherited heart conditions.

Genetic Alliance supports people with genetic, rare and undiagnosed conditions in the UK.

Team

Our team is made up of:

  • consultants
  • visiting consultants
  • specialist nurses
  • genetic counsellors
  • a specialist cardiac physiologist
  • administrative staff

Consultants

Dr Rachel Bastiaenen, consultant cardiologist and honorary senior lecturer (clinical lead for ICC)

Professor Gerald Carr-White, consultant cardiologist (clinical director)

Dr Michael Cooklin, consultant cardiologist and electrophysiologist

Dr Yaso Emmanuel, consultant cardiologist

Dr Brian Halliday, consultant cardiologist

Dr Tevfik Ismail, senior lecturer and honorary consultant cardiologist

Dr Stam Kapetanakis, consultant cardiologist

Dr Sujeev Mathur, consultant paediatric cardiologist

Dr Radha Ramachandran, consultant in metabolic medicine

Dr Will Regan, consultant paediatric cardiologist

Dr Leema Robert, consultant in cardiovascular genetics

Professor Eric Rosenthal, consultant paediatric cardiologist and electrophysiologist

Dr Hannah Sinclair, consultant cardiologist

Dr Nabeel Sheikh, consultant cardiologist and honorary senior lecturer

Dr Jessica Webb, consultant cardiologist (clinical lead for heart failure)

 

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