Kidney

Phone: 020 7188 5664

Email: guyscystinosis@gstt.nhs.uk

Location: rare diseases centre, South Wing, St Thomas' Hospital, Westminster Bridge Road, London SE1 9EH

Opening times: 3rd Thursday afternoon of the month, at least 6 times a year

This consultant-led clinic is one of the 3 national centres for cystinosis in England. We recommend that all adults with cystinosis are seen at one of the centres. You can choose to be seen at the centre closest to you. 

We see most adults with cystinosis once a year at this clinic, sometimes more often.

We aim to make sure all your health needs are being addressed. This can involve care and treatment:

• closer to where you live
• with other specialised services at our hospital

We supervise the prescription of your cystinosis medicines. We check levels of white cell cystine in your blood. This is important for dosing your medicines.

You'll also be seen at our eye clinic.

This clinic is by appointment only. You need a referral for an appointment at this clinic.

Phone: 020 7188 7188, extension 87922

Location: kidney clinic, 4th floor, Tower Wing, Guy’s Hospital, Great Maze Pond, London SE1 9RT

This is a consultant-led clinic for people with polycystic kidney disease. Treatment and care at this clinic includes:

• management of blood pressure
• assessment for tolvaptan therapy

Email: gst-tr.renalreferralsguys@nhs.net

Location: kidney clinic, 4th floor, Tower Wing, Guy’s Hospital, Great Maze Pond, London SE1 9RT

Opening times: Tuesdays, 1.30pm to 5pm

This consultant-led clinic assesses people for renal tubular conditions. You need a referral for an appointment.

We assess people with high and low potassium levels to understand if they have a kidney condition.

Visit our transplant support service for more information about the transplant support clinic.

Phone: 020 7188 7188, extension 7488

Location: kidney clinic, 4th floor, Tower Wing, Guy’s Hospital, Great Maze Pond, London SE1 9RT

Your kidney doctor or nurse will refer you to this clinic if you need an arteriovenous (AV) fistula formed in your arm. This involves surgery to join one of your veins to an artery, usually at the wrist or elbow. It will allow more blood to flow through the vein. As a result, the vein grows larger and stronger. This makes repeated needle insertions for haemodialysis treatments easier.

You can find out more about what to expect on our having an arteriovenous (AV) fistula formed page.

It will take at least 6 to 8 weeks for the vein to be large enough to be used for dialysis. We'll see you again at the clinic about 4 to 6 weeks after your operation. You'll have a scan to check that the vein is ready to be used.

This clinic is led by our surgeons and nurse specialists.