Your appointment with the community sickle cell team

Helping you to manage your illness 

Clinic locations

Our clinics are held at various locations:

    • Guy's and St Thomas'
    • King's College Hospital
      Denmark Hill
      London SE5 9RS 
    • University Hospital Lewisham
      Lewisham High Road
      Lodon SE13 6LH
    • South East London sickle cell and thalassaemia centre Mary Sheridan Centre (Wooden Spoon House)
      5 Dugard Way
      Renfrew Road
      London SE11 4TH
    • GP surgeries and nurse-led clinics in Lambeth, Southwark or Lewisham

Sometimes we can see you at your home or any other location where it is appropriate. 

Our genetic counselling clinics are held mainly at the Mary Sheridan Centre in Lambeth.

How to access the service

You can refer yourself or child to our service using the contact details in the contacts box on this page

Or you may be referred by other healthcare professionals, or a screening programme, such as the NHS Sickle Cell and Thalassaemia Programme.

  • Cancelling or changing your appointment 

    Please telephone 020 3049 5993 as soon as possible.

  • Your first appointment

    We may see you before your baby is born, if they've been identified as being at risk of having sickle cell disease or thalassaemia. We provide both genetic counselling and screening services.

    If your newborn baby has been diagnosed with sickle cell disease or thalassaemia, one of our community nurses will come to talk to you at home to provide you with information about the support available to you and your family.

    Your first appointment can take up to an hour. The nurse will ask you questions about your general health, and will agree a care plan with you. The nurse will also ask you how you would like to be contacted, for example by text, telephone, letter or follow-up appointment.

    They will then refer you and your child to the hospital of your choice – it is this hospital that you will be seen at for your routine hospital appointments.

    Sometimes we may have student nurses present at your consultation but we will ask for your consent for them to be present. If you would like to have someone with you during your consultation, please tell a member of the team. You can bring a friend or relative.

  • Confidentiality

    We will not tell other people about your appointment. It is up to you to tell them if you wish. This applies to everyone, including people younger than 16 years of age.

    We will only pass on confidential information without your permission if we need to protect you or someone else from very serious harm. We will always discuss this with you first.

    If you want to know more about confidentiality, please ask us.

  • After your appointment

    If you have had tests, we will contact you with the results within two weeks.

    Alternatively, you can also contact the nurse directly on their mobile (where this has been agreed) or the main office on 020 3049 5993.

    The community nursing team will continue to support your child as they grow older, and you and your family, providing:

    • health promotion, training and awareness programmes
    • education and support for you, your family and healthcare professionals
    • helping to manage symptoms and your child's condition
    • home visits
    • pain management
    • blood testing
    • specialist nurse reviews at community clinics and during hospital visits
    • assessment and support with social needs, for example housing, for example welfare benefits and advice
    • resources and information
    • care and support.
 

Support groups

Parent peer support group

  • When: third Monday of every month, 10am-12.30pm
  • Where: Mary Sheridan Centre
  • Contact: 020 3049 5993 for more information.

Welfare support drop-in sessions

  • When: fourth Friday of every month
  • Where: Evelina London Children's Hospital
  • Contact: Daniel Nyakutsey on 020 3049 6088 / 5993 for more information.